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Managing Von Willebrand Disease: From Medications to Lifestyle Changes
Published: Apr 19, 2024
Treating Von Willebrand Disease (VWD) isn't one-size-fits-all. It involves a combination of medications, lifestyle adjustments, and sometimes procedures, tailored to each person's specific type and severity of VWD.
Medications: The First Line of Defense
The main medications used to treat VWD work by either increasing von Willebrand factor (VWF) levels or helping blood clot more effectively. Desmopressin (DDAVP) is a synthetic hormone that can boost VWF levels in many people with type 1 and some with type 2 VWD. For those who don't respond to DDAVP, VWF concentrate infusions are an option. Think of these treatments like adding more glue to help your blood stick together better.
Lifestyle Adjustments: Small Changes, Big Impact
Managing VWD also involves lifestyle changes. This might include avoiding blood-thinning medications like aspirin, using caution during physical activities to prevent injuries, and maintaining good dental hygiene to reduce gum bleeding. For women, hormonal treatments might help manage heavy menstrual bleeding. It's like creating a safety net in your daily life to minimize bleeding risks.
Specialized Treatments: Tackling Specific Issues
Some VWD complications require specialized treatments. For gastrointestinal bleeding, endoscopic procedures might be necessary. In cases of severe nosebleeds, nasal packing or cauterization could be used. These targeted treatments are like having a toolbox of options to address specific bleeding issues.
Planning Ahead: Preparing for Surgeries and Childbirth
People with VWD need special care during surgeries and, for women, during childbirth. This often involves preventive treatment with DDAVP or VWF concentrates before procedures. It's like putting on a safety harness before embarking on a challenging climb - it provides extra protection when you need it most.
Frequently Asked Questions
There's no cure, but treatments can effectively manage symptoms.
Often yes, but treatment needs may change over time.
A healthy diet supports overall health, but doesn't directly treat VWD.
Yes, but high-impact or contact sports may need to be avoided.
Stress management is important as stress can potentially worsen symptoms.
The Road Ahead
While living with VWD presents challenges, modern treatments and management strategies can help most people lead full, active lives.
References
- Nichols WL, et al. von Willebrand disease (VWD): evidence-based diagnosis and management guidelines, the National Heart, Lung, and Blood Institute (NHLBI) Expert Panel report (USA). Haemophilia 2008; 14:171.
- Laffan MA, et al. The diagnosis and management of von Willebrand disease: a United Kingdom Haemophilia Centre Doctors Organization guideline approved by the British Committee for Standards in Haematology. Br J Haematol 2014; 167:453.
- James PD, et al. ASH ISTH NHF WFH 2021 guidelines on the diagnosis of von Willebrand disease. Blood Adv 2021; 5:280.
This article has been reviewed for accuracy by one of the licensed medical doctors working for Doctronic. Always discuss health information with your healthcare provider.
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